• Cancer And Quality Of Life

    • Date: 24th November 2021
    • Time: 15:00H -16:00h CET
    • Location: Online

    Dear Members,

    We warmly invite you to attend the online event “Cancer and Quality of Life: Overview of some unmet needs of life after cancer diagnosis, treatment, and survivorship”.

    The webinar seeks to offer an overview of the key issues concerning Quality of Life during cancer treatment & survivorship in Europe and suggest proposals to improve the quality of life for cancer survivors in the European area.

    Agenda

    Welcome, housekeeping rules and Introduction

    • Jacqueline Daly, ECPC Board Member
    • Mark Lawler, Associate Pro-Vice-Chancellor, Professor Queen’s University Belfast, ECPC Scientific committee member

     

    Europe’s Beating Cancer Plan and the implementation of sustainable strategies around quality of life and survivorship of cancer patients

    • Alessandra Moretti, MEP and BECA Committee member

    The impact of cancer-related comorbidities on patient treatment, treatment efficacy, survivorship, and quality of life

    • Matti Aapro, Board of Directors of the Genolier Cancer Center, Genolier, Switzerland, President of the European Cancer Organisation

    Value based care approaches to improve quality of life during cancer treatment and survivorship

    • Volker Bischoff, Alcimed Senior Healthcare Project Manager & Great Explorer Oncology

    Right to be forgotten (for the cured patients)

    • Françoise Meunier, Chair EACS Committee on Cancer Survivorship, ARMB;ECPC  Scientific committee member

  • NMSC in Europe: Tackling health inequalities, raising awareness of patients and informal carers, and improving their quality of life

    • Date: 28-10-2021
    • Time: 11:30 - 13:00h CET
    • Location: Online

    Follow us on a webinar on the 28th October 2021 from 11:30h – 13:00h CET.

    The webinar discussion will bring together decision-makers, cancer patients, their caregivers and healthcare professionals to explore the NMSC landscape in Europe, raise awareness and discuss ways to improve the quality of life of patients and their caregivers.

    The webinar will provide a holistic overview of the state of play in NMSC and will seek to tackle the importance of awareness among the NMSC patient community, carers, vulnerable populations and the general population.

    The webinar will also provide an overview of the socio-economic inequalities affecting NMSC patients across Europe, discussing differences within and between European Member States in terms of disease awareness and patient experience throughout the care pathway – including prevention, diagnosis, treatment and quality of life.

    Furthermore, speakers will provide valuable insights on how to tackle the identified inequalities between and within countries to ensure all NMSC patients can have timely and affordable access to the right treatment.

    The online event will not only raise awareness on NMSC, its symptoms and how it can be prevented but also on the relevant role that caregivers fill when a patient is diagnosed with NMSC.

    Lastly, the webinar will address the importance of improving the quality of life (QoL) of NMSC patients as a key contributor to overall wellbeing.

     

    AGENDA
    Introduction and housekeeping

    • Swen Malte John,  Professor and Chairman, Dept. Dermatology, Environmental Medicine, Health Theory, University of Osnabrück
    • Antonella Cardone, Director of the European Cancer Patient Coalition (ECPC)

    Welcome address

    • Ken Mastris, President of European Cancer Patient Coalition (ECPC)

    Raising awareness on NMSC

    • Alexander Stratigos, President of European Academy of Dermatology and Venereology (EADV)

    The Policymakers’ perspective

    • MEP Jens Gieseke, (EPP, Germany)

    Health inequalities across the care pathway and quality of life of NMSC patients around Europe

    • Jukka Takala, President of the International Commission on Occupational Health (ICOH)

    Improving the quality of life of NMSC patients in Europe: what are the steps to be followed?

    • Matthias Augustin, Director Institute of Health Care Research in Dermatology and Nursing, Chair of Health Economics and Quality of Life Research Hamburg University

    The informal carers’ challenges through treatment and survivorship

    • Claire Champeix, EUROCARERS representative

    My NMSC journey

    • Jacqueline Daly, Patient representative

    Q&A

    • All

    What’s next? Closing

    • Swen Malte John, Professor and Chairman, Dept. Dermatology, Environmental Medicine, Health Theory, University of Osnabrück
    • Antonella Cardone, Director of the European Cancer Patient Coalition (ECPC)

  • Opportunities for Hepatitis Related Cancer Prevention in Europe’s Beating Cancer Plan

    • Date: 28-10-2021
    • Time: 10;00 -11:00h CET
    • Location: Online

    October is Liver Cancer Awareness Month (LCAM). This year, LCAM is only a few weeks prior to the vote of the European Parliament’s Special Committee on Cancer (BECA) on its report guiding the implementation of the European Commission’s Beating Cancer Plan.

    You can register for this event through this link: https://us06web.zoom.us/webinar/register/WN_plVGXx-tTJmP8RaQ82Tc2w

    This event will raise awareness on the opportunities in significantly reducing the burden of liver cancer by better tackling viral hepatitis B and C. We will discuss these with EU policymakers in view of the cancer prevention initiatives mentioned in the Cancer Plan (e.g. the European Code Against Cancer, the EU Mobile App for Cancer Prevention, the planned Council Recommendation on vaccine preventable cancers, the updated Recommendation on cancer screening, initiatives targeted at vulnerable populations, etc.)

    The event is organised in collaboration with EASL (European Association for the Study of the Liver) and ACHIEVE (Associations Collaborating on Hepatitis to Immunize and Eliminate the Viruses in Europe) both members of the European Cancer Patient Coalition (ECPC)’s Cancer Complications and Comorbidities Initiative.

    Speakers:
    1. Sue Saville – Moderator
    2. MEP Aldo Patriciello – Co-Chair of the European Parliament ‘Challenge Cancer’ Intergroup
    3. Prof. Peter Jepsen – Member of the Policy and Public Health Committee of the European Association for the Study of the Liver (EASL)
    4. Professor Dr. Maria Buti – EU Policy Councillor of the European Association for the Study of the Liver (EASL)
    5. George Kalamitsis – Hepatitis patient representative and Co-Chair of ACHIEVE
    6. Dr. Matthias Schuppe – European Commission, Team Leader of Europe’s Beating Cancer Plan Taskforce [TBC]
    7. Prof. Dr. Romana Jerković – Member of the BECA Committee
    8. MEP Lídia Pereira – Member of the BECA Committee [TBC]
    9. MEP Radan Kanev – Member of the European Parliament ENVI Committee

  • Palliative Care and End-of-Life research from the patient’s perspective, with the human in the center

    • Date: 14-10-2021
    • Time: 12:00- 13:30h CEST

    On behalf of the Palliative Sedation EU-funded project, we are happy to invite you to the first webinar of the webinar series on palliative care research.

    In this series, the InAdvance Project invites international speakers from other palliative care and end-of-life research projects funded by the European Union’s Horizon 2020 research and innovation program to talk about palliative care research. Take a look at the agenda here.

    All webinars will be free and held online via Zoom, you can register through this link. They will also be recorded and made available online.

    In the first webinar, we will discuss Palliative Care and End-of-Life research from the patient’s perspective, with the human in the center. The projects presented will be: InAdvance, DIAdIC and iLIVE projects.

     

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