Why it matters
ECPC is proud to represent the interests of all cancer patient groups, from the most common to the rarest forms of cancer and derives its mandate to speak with ‘‘one voice’’ for all people with cancer from its wide membership base. Some types of cancer however receive less attention than others at the European level due to political considerations, lack of awareness, lack of prior research or due to less people being affected by them. Whilst some cancers have strong European representation, others do not, yet the challenges faced by cancer patients with such forms of cancer are just as real as any others. When either our members bring to our attention that a specific cancer type is underserved, or new research reveals that a specific cancer type needs to be addressed in a particular, ECPC looks into bringing solutions to address it.
“Some of the information was not relevant to my situation. To go through all the information was beyond what I was up for, so most of it remained unread.”
What ECPC does
ECPC works on cross-cutting issues affecting all cancer patients, but with specific cancers when the need arises ECPC relies on the expertise of our member patient organisations which are dedicated to specific cancers and they often contribute with their strong expertise and unique experiences. ECPC has established a Working Group for Urological Cancers that covers prostate cancer, kidney cancer and bladder cancer which together make up over a sixth of all yearly cancer cases in Europe. ECPC has published joint White Papers with other organisations, such as European Association of Urology, on Bladder and Kidney Cancers and PSA Screening for Prostate Cancer with events in the European Parliament. ECPC leads European and global awareness campaigns on Bladder Cancer, Non-Melanoma Skin Cancer and actively contributes to Prostate Cancer, Pancreatic Cancer and Make Sense of Head & Neck Cancer awareness campaigns. ECPC plays a crucial role in linking the campaigns with policy activities at EU level and has organized events in the European Parliament in connection to awareness and policy work on different types of cancer.