• How can Europe’s Beating Cancer Plan help tackle women’s cancers?

    Dear members,

    ECPC is organizing together with GSK and ENGAGe the webinar “How can Europe’s Beating Cancer Plan help tackle women’s cancers?” . It will take place online on Thursday, 6th of May from 10:00 to 11:30 CET, you can register for the event via this link.

    Cancer is the second leading cause of mortality in Europe and one of the main health priorities for the European Commission. As we enter the crucial phase of implementing Europe’s Beating Cancer Plan, there is optimism that by working together, we can make a difference for a better tomorrow.

    The event will gather European policymakers, patient organisations and industry to share ideas and discuss solutions to improve outcomes in women’s cancers and help make the EU’s ambitions set out in the Beating Cancer Plan a reality. Speakers include Stella Kyriakides, European Commissioner for Health and Food Safety, Romana Jerkovic, Member of the European Parliament, and representatives from the European Cancer Patients Coalition (ECPC), the European Network of Gynaecological Cancer Advocacy Groups (ENGAGe) and GSK.

    We look forward to e-meeting you!

  • Launch event: Joint letter on COVID-19 and cancer

    Dear ECPC Members,

    ECPC started a global campaign on the Joint letter on COVID-19 and cancer and invited stakeholders around the globe to endorse the letter. It will be launched during World Health Day on Wednesday, 7th April from 18:00 to 19:00h CET in a virtual event. You can register via this link.

    During the event, representatives from the European Cancer Patient Coalition (ECPC), the Union for International Cancer Control (UICC), the European Federation of Pharmaceutical Industries (EFPIA) Oncology Platform and the European Cancer Organisation (ECO) will participate at the meeting.

    The event will focus on the impact that COVID-19 has had on cancer and the innovations in cancer care as well as the improvement of cancer patient outcomes during the COVID-19 pandemic. The virtual meeting is dedicated to media representatives as well as the general public.

    We have reached more than 260 signatories but a lot of you are still missing. We would like our members to endorse this letter. It is a great opportunity to show unity around a relevant issue for cancer patients and the health community more broadly.

    You can do so by filling in this form. Do not forget to attach your logo so it can be included in the letter!

    Please, find the final agenda of the event here.

    We look forward to e-meeting you!

  • EU Joint Action on Rare Cancers (JARC) recommendations towards implementing the Rare Cancer Agenda 2030

    Dear Members,

    We are happy to invite you to our next public event: “EU Joint Action on Rare Cancers (JARC) recommendations towards implementing the Rare Cancer Agenda 2030” that will take place on Wednesday, 24th of February 2021 from 16:00 to 17:00 CET.

    This event, hosted by the Challenge Cancer Intergroup, is an interesting opportunity to discuss about the implementation of the Rare Cancer Agenda 2030 in the EU.

    Despite the rarity of each of the 198 identified rare cancers, collectively they represent 24% of all new cancer cases diagnosed in the EU28 each year. Five-year relative survival is worse for rare cancers (47%) than for common cancers (65%), and differences in survival exist across European countries, therefore suggesting the existence of inequalities in healthcare.

    The EU created the European Reference Networks (ERNs) in 2017 on several rare diseases, including four related to rare cancers: ERN on rare adult cancers (ERN EURACAN), ERN on haematological diseases (EuroBloodNet), ERN on paediatric cancer (ERN PaedCan), ERN on genetic tumour risk syndromes (ERN GENTURIS). The shortcoming of these ERNs is the lack of awareness among patients and, as a result, the lack of access to the benefits offered by these networks because access is strictly linked to hospitals.

    Also following this evolution in the perception of rare cancers as a distinct issue in the world of oncology, the EU prompted JARC (Joint Action on Rare Cancers). JARC gathered around the same table all stakeholders in the field of rare cancers and rare diseases. The goal of JARC was to contribute to improve health outcomes for patients with rare cancers in the EU maximizing chances of ERNs on rare cancers to be successful.

    An agenda on rare cancers was perceived as instrumental to prioritise rare cancers in the agenda of the EU and Member States to minimise the risk that rare cancer patients may be discriminated against simply because of the numbers of the disease they suffer from.

    Objectives:

    1. Raise awareness about the EU Joint Action on Rare Cancers (JARC) recommendations for the Rare Cancer Agenda 2030.
    2. Open the debate about their implementation at the national level and the need to activate the ERNs network to make it more accessible for patients.

     

    Please register here to ensure your participation in the event.

    You can find the draft agenda here.

     

  • 14 Million Reasons to Discuss Life after Cancer: Implementing the Right to be Forgotten across Europe

    Dear ECPC Partner,

    On behalf of Professor Françoise Meunier, a member of ECPC’s Scientific Committee, we are pleased to invite you to an online event entitled “14 Million Reasons to Discuss Life after Cancer: Implementing the Right to be Forgotten across Europe” which will take place on 19 February 2021 from 10:30 to 12:30 (CET). The agenda is available here.

    The European Commission’s decision to launch Europe’s Beating Cancer Plan on 3 February meant that this event originally due to take place on the same was rescheduled. This decision was not taken lightly, and in close collaboration with the office of Commissioner Kyriakides, we have opted to select this new date.

    Today, the vast majority of cancer survivors across Europe are confronted with daily discrimination which sees them blocked from being able to secure the loans and mortgages they need to pursue their lives.

    This crucial event will therefore focus on the implementation of the Right to be Forgotten, a right which can help ensure that former cancer patients no longer suffer from financial discrimination following the end of their treatment.

    This discrimination needs to come to an end which is why, one year after the launch event of the EU’s Beating Cancer Plan, this event will provide a platform for key stakeholders to collaborate on identifying the right path for the implementation of this right across Europe. Given the growing number of cancer survivors in Europe, we now have over 14 million reasons to discuss not only the need for an EU approach to the Right to be Forgotten, but also the implementation of a right which has now been widely recognised by European policymakers. 

    The event co-hosted by MEPs Manuel Pizarro (S&D, Portugal), Tilly Metz (Greens, Luxembourg) and Tomislav Sokol (EPP, Croatia) will gather a wide range of stakeholders, such as patient group representatives, healthcare professionals and EU Institutions who together can ensure that the Right to be Forgotten becomes embedded into the EU’s health agenda.

    Please register here to ensure your participation in the event.  

    You can check the list of speakers here

    Thanks to medicine’s tremendous progress, cancer is no longer a death sentence. Let’s make sure we give cancer survivors every reason to end discrimination after cancer.

    Kind regards,
    ECPC

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