Dear members,

The “Quality of Life” report, by the Brain Tumour Charity, that we attach below is based on a survey of 300 people who are living with brain tumours or who are carers, and the findings illustrate the gaps between care expectations and the reality of care, support and information provision in parts of the UK.

Some standout figures:

– 38% of respondents were not diagnosed with the disease until after FIVE or more visits to their doctors.

– More than 60% of those living with the disease reported being given no information about care plans, counselling or financial advice.

– More than 80% of carers said that caring for someone with a brain tumour had a negative effect on their emotional wellbeing and more than half said that their duties had affected their jobs, hobbies and relationships with friends and the person they care for.

The full report can be read here