From 8-10 June, 210 stakeholders from 156 organisations and 35 countries gathered in Brussels for the 2018 Annual Congress of the European Cancer Patient Coalition. Representatives from patient organisations, academia, health professionals, and industry met to discuss communication, health technology assessment, immuno-oncology therapy, and survivorship. Members of the European Cancer Patient Coalition were also selected to share their best practices, successes, and challenges.

The President of the European Cancer Patient Coalition, Francesco De Lorenzo, presented some of the Coalition’s successes in 2017. The Coalition actively participated in the European Commission public consultation on the future of Health Technology Assessment, were co-authors of the European Commission’s “CanCon European Guide on Quality Improvement in Comprehensive Cancer Control”, and successfully advocated for improvements to the World Health Organisation’s 2017 Cancer Resolution. The Coalition is very proud to be invited to join the European Commission’s Innovative Partnership Action Against Cancer, which has just been launched. The European Cancer Patient Coalition is one of the few cancer patient organisations directly involved in research. In 2017, the Coalition was an active member of two Innovative Medicines Initiative projects, four Horizon 2020 projects, and one Seventh Framework Programme project.

“These results are an important achievement for all Members of the European Cancer Patient Coalition. The ultimate mission of our organisation is to listen to our Members and represent them at the European level.” said Francesco De Lorenzo, President of the European Cancer Patient Coalition. “Each one of our Members are essential for the work of our organisation, and I warmly thank all of them for their tireless work to support Europeans affected by cancer.”

In a session chaired by European Cancer Patient Coalition Vice President, Kathi Apostolidis, participants discussed the current situation and future EU cooperation on Health Technology Assessment. A draft online educational module for patient organisations, developed by the European Cancer Patient Coalition, was presented for feedback. Furthermore, there were presentations on reimbursement, how to create a win-win situation, and the European Commission’s proposal for stronger EU cooperation on Health Technology Assessment.

This event was held under high patronage of the Her Royal Highness Princess Astrid of Belgium, the European Parliament, and the European Commission. In a video message from the European Commissioner of Health & Food Safety, Vytenis Andriukaitis stated “Cancer patients across Europe regrettably face disparities and delays in accessing innovative technologies that work, therefore I think that the focus on Health Technology Assessment for this Annual Conference is excellent. This is a very important and very relevant issue. I believe that EU cooperation has clear potential to facilitate innovative technologies across Europe that truly provide patients with the best treatment available for their specific conditions. The European Parliament and Council are currently discussing the Commission’s proposal on HTA. This is the moment that the constructive input of the European Cancer Patient Coalition and all patient organisations is of crucial importance. I would like to thank you for your continued engagement and strong support on our HTA proposal.”

Speakers’ presentations

FRIDAY 8 JUNE – Annual Congress

ECPC’s Achievements in the past year

• ECPC President, Board and Secretariat

Communicating with People affected by Cancer past

• John Smyth,  University of Edinburgh UK

SATURDAY 9 JUNE – Annual Congress

Panel I: Health Technology Assessment (HTA) 

HTA online education module

Overall aims
Presentation of the animation
Introduction to the purpose of the session
Module Content Overview
Module structure, functionality and supporting booklet
“Guided Tour” of each chapter of the module

• Katie Hamilton, Costello Medical

HTA and reimbursement

• Irina Cleemput, Belgian HealthCare Knowledge Institute

Overview of the European Commission’s HTA proposal

• Ioana Siska, European Commission, DG SANTE

How to create a win-win solution

• Ivana Cattaneo, Vice-Chair Efpia Oncology Platform

Panel II: Immuno-oncology therapies & molecular testing

The basics of tumour immunology

• Leif Hakansson, Chairman of the CDDF Board of Directors

 Molecular testing in the era of personalised medicine

• Nicola Normanno, Istituto Nazionale per lo Studio e la Cura dei Tumori

Panel III: Cancer Carers

ECPC White Paper on Cancer Carers

• Francesco De Lorenzo, ECPC President

 Eurocarers Cancer Carers Toolkit, produced in collaboration with ECPC

• Claire Champeix, Policy Officer at Eurocarers

Panel IV: ESMO-ECPC Survivorship Guide

• Kathi Apostolidis, ECPC Vice-President
• Francoise Meunier, European Organisation for Research and Treatment of Cancer