Rejoining the ECPC Board at challenging times… but I hope to contribute by my advocacy experience to the process of strengthening the position of a credible umbrella organisation towards the EU policy and research institutions, its members and stakeholders.
Challenges of my cancer patient journey, have terminated my professional career and transformed it into patient advocacy. I have set up a blood cancer patient society in the Czech Republic, became one of the founding trustees of a Swiss based Leukemia Patient Advocates Foundation, which is a legal entity for global blood cancer platforms. Co-founder of CML Advocates Network, CLL Advocates Network and involved in patient networks for Acute leukemias, Myeloproliferative neoplasms and Myelodysplastic syndrome. I have spent three election periods (2010-2019) in ECPC Board, focused on rare cancers, ECCO Patient Advisory Committee, EHA patient workgroup. Currently I’m member of the ESMO Patient Advocacy Working Group, also involved with EMA and, at the Ethics Advisory Committee of the IMMUNE-IMAGE project. My phone number for two decades serves as a non-stop telephone help line for Czech blood cancer patients, now incorporating also Ukrainian patients due to my knowledge of Russian language.
As a third generation of cancer in our family I can only highlight the objectives of the EU Mission on cancer: understanding cancer, prevent what is preventable, optimise diagnostics and treatment and, support quality of life.
We understand that when you make a donation, you want to know exactly what happens to your money. We aim to be clear and transparent when it comes to using your contributions in our mission to fight cancer.
Your donations not only help us to empower the cancer patient community and make a positive difference to healthcare, treatment and accessibility, but also enable us to:
ensure our members are engaged and feel part of an active community through information, training, unique resources, tools, opportunities and networking at a national and European level
legitimise our position of cancer patient representatives before decision-makers
build a reputation as a cancer patient expert within the scientific community
find partners sharing the same vision, values and goals to work together on projects
get the media’s attention in order to publish and disseminate our messages