Leading a large, committed, involved in many aspects of cancer and very active European patient umbrella organization can be challenging at times. It gives me the opportunity to put my knowledge, experience and skills at the service of European cancer patients and families.
Lots of hurried travels for meetings, tens of pages for reading and writing/reviewing long documents! but also a friendly, collegial, supportive, highly professional board and Secretariat. One day I will write an essay on “One day in the life of a volunteer cancer patient advocate”…
Public Affairs Consultant with broad and diversified experience in regulatory and public affairs, trade diplomacy, strategy, marketing and communications. At the national level I am a founding member and President of the Hellenic Cancer Coalition-ELLOK (ellok.org) and a Director/Board Member of other Greek cancer patient associations. Honored to represent cancer patients at the Board of Directors of the recently legalized and under establishment Greek National Cancer Institute and in the Patient Registries Committee of the Greek Ministry of Health. Also member of the National Network of Precision Medicine representing cancer patients. Surviving breast cancer twice, I have been involved for many years in cancer policy advocacy, survivorship and cancer patient rights advocacy on the national and international level. My advocacy covers issues of access to cancer care, health technology assessment, digital technology in cancer care, informed shared decision making in cancer, patient involvement in cancer research, cancer care delivery, health and digital literacy, patient safety.
Because it concerns all of us and has affected me and my family in many ways and because I believe that change will be possible by informed, committed and actively involved citizens.
We understand that when you make a donation, you want to know exactly what happens to your money. We aim to be clear and transparent when it comes to using your contributions in our mission to fight cancer.Your donations not only help us to empower the cancer patient community and make a positive difference to healthcare, treatment and accessibility, but also enable us to:
ensure our members are engaged and feel part of an active community through information, training, unique resources, tools, opportunities and networking at a national and European level
legitimise our position of cancer patient representatives before decision-makers
build a reputation as a cancer patient expert within the scientific community
find partners sharing the same vision, values and goals to work together on projects
get the media’s attention in order to publish and disseminate our messages