As announced at the ECPC Annual Congress 2018, the European Cancer Patient Coalition is leading an EU-level campaign towards greater equality in social and employment matters related to cancer care. Although health may not be one of the European Union competencies, social issues and discrimination are.  

The ECPC Legal Network for Cancer Patients would like to invite you to join us and take this opportunity to help us achieve real change in securing social rights across the European Union for all people affected by cancer: those undergoing acute treatment, the survivors and those with advanced and metastatic cancers, including people who care for them – their carers.

European Cancer Patient Coalition and the European Organisation for Research and Treatment of Cancer has lauched the survey on The Socio-Economic Burden of Cancer in Europe.

Click here to go to survey (English) or if you would like to preview the questions first, you can download the questionnaire by clicking here.

The survey has been translated into the following languages: Czech, Greek, Finnish, French, Croatian, Italian, Dutch, Polish, Portuguese, Romanian and Swedish. The survey in these languages will be made available in the week commencing 15 October 2018

We need to build a better picture of social disparities in Europe. We can do so by building our knowledge on the current state of a range of social and employment matters in each Member State. It will enable the European Cancer Patient Coalition (ECPC), the European Organisation for Research and Treatment of Cancer (EORTC) but also you – our members, to request commitment from the people asking for your vote in the next European Parliament Elections taking place in 2019, and to request EU institutions as well, to put the needs of people with cancer high on the European agenda. 

The findings of this survey will help us to create a better picture of social disparities that exist in Europe, provide concrete examples of best and worst practices and enable us to create a clearer link between cancer patients’ rights and the employment rights.

We kindly ask you to take the time to answer the following questions according to your real-life experience or professional knowledge and do not hesitate to add any further comments or requests that you think are important.  

The Survey  is open until 14 December 2018.