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Nutrition is a crucial component of cancer treatment and rehabilitation as it helps patients better cope with illness. However, given the focus on the cancer and its cure, nutrition is often neglected, leaving patients and their families with doubts, questions and the need for practical 
guidance on how to eat better on a daily basis, especially during therapy.  
 
Nutrition front page.2

 


ECPC Nutrition Survey

In 2015 ECPC sent out an extensive survey on nutrition and its importance on the treatment and life of cancer patients. The results were presented during the ECPC Anual Meeting 2015 in Brussels. The preliminary data obtained from the survey suggested that discrepancies still existed between patients’ expectations and the answers they may get from physicians about the metabolic and nutritional issues in cancer.

Building up on the pilot survey, in 2016 the European Cancer Patient Coalition continued its efforts with a second round of the survey in order to have enough data and maximise the impact of the answers received. The new version was adapted in order to directly address individual cancer patients and cancer survivors. It aimed to describe and understand the perception of the importance of metabolic and nutritional problems among patients and cancer survivors. The study was conducted by a survey of cancer patients and  survivors.
 
A total 907 patients and survivors, distributed in 10 European countries (Finland, Italy, Spain, Czech Republic, Greece, Denmark, Slovenia, Romania, Poland, Bulgaria) answered the questionnaire.
 
Patients were aware that weight loss related to their condition was negatively impacting on their therapy management, quality of life and social aspects. While not aware about cachexia and its implications, they were willing to receive more information about how to manage this issue.
 
They were also not aware about artificial nutrition options, nor potential negative impacts of vitamins and anti-oxidants on their therapy. Furthermore, they reported that their physicians were generally not focused on nutrition. Respondents reported that their physicians were not regularly checking for weight loss, providing information about weight loss management or appetite improvement, or referring patients to a nutritionist.

The study showed a substantial gap in terms of need for information and practical management of cancer-related nutritional problems for people with cancer.


Cancer Patient's Bill of Rights

The Cancer Patients’ Bill of Rights for appropriate and prompt Nutritional Support is a charter of rights for cancer patients with regards to nutrition, linking it to existing elements such as the ESMO nutrition guidelines. 

The draft version is currently available for review here.

Person with cancer eating in hospital


Upcoming Activities

September 2017 ESMO Congress: On Sunday 10 September at 13:15, the European Cancer patient coalition will present poster 1450P - European nutrition survey - in Hall 8.

October 2017 Nutrition Event

March 2018 Social Media Campaign 


Related Documents

Nutrition Survey 2015

Nutrition Survey 2016

Nutrition Brochure.. coming soon

Nutrition Leaflet.. coming soon


Acknolwegments

Supported by

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