Join our Bladder Cancer Working Group

In order to better represent the bladder cancer patient community, ECPC counts on the expertise and collaboration of bladder cancer patient organisations all over Europe. ECPC is establishinga Bladder Cancer Working Group to guarantee that bladder cancer patients and patient organisations will be able to contribute to our bladder cancer activities.

How to join the Working Group

We invite all bladder cancer patient organisations and ECPC Members with an interest in bladder cancer to express their interest in joining the Bladder Cancer Working Group until the 20th of March 2017

We strongly encourage bladder cancer organisations, as well as ECPC Members and non-member general cancer patient organisations supporting also bladder cancer patients to become a member. You may contact This email address is being protected from spambots. You need JavaScript enabled to view it. by email stating:

  • Your name and function
  • Your interest to join and the reason why you want to be involved
  • The name and contact details of your organisation

You will receive a confirmation email shortly after your application has been submitted. 

Working Group on Bladder Cancer

Objectives

The key objective of the Bladder Cancer Working Group is to give ECPC Members and non-members with an interest in bladder cancer the opportunity to formally and directly contribute and collaborate in our bladder cancer work.

Bladder Cancer Working Group members will also have the opportunity to use the platform to decide on further topics for discussion of interest to Bladder Cancer patients. The aim of the Bladder Cancer Working Group is to provide its members and all ECPC Members with a practical and effective instrument to react to the European and national policy challenges related to bladder cancer.


Activities

In 2017, the Bladder Cancer Working Group will be responsible for:

  • Agreeing on the vision for the group, main messages and policy asks
  • Agreeing on the Terms of Reference for the group
  • Providing input on the bladder cancer patient experience survey
  • Providing input on ECPC activities during Bladder Cancer Awareness Campaign in May
  • Providing input on ECPC policy and patient education webpages on bladder cancer
  • Ensuring that ECPC bladder cancer activities promote full patient engagement and empowerment
  • Contributing to the dissemination of patient information on bladder cancer both at national and European levels

Organisation and Composition of the Working Group

  • Every ECPC Member (Full and Associate) and non-members active in bladder cancer can join the working group.
  • The working group will have two Chairs. The Chairs will be responsible for moderating and involving everyone in the discussions and guiding the work of the Bladder Cancer Working Group.

Andrew Winterbottom, ECPC Board member and Treasurer will be one of the Chairs of the Bladder Cancer Working Group. Andrew is a bladder cancer patient, as well as the founder and director of Fight Bladder Cancer.

- Once the working group has been established, the Bladder Cancer Working Group members will vote for the other Chair among the Bladder Cancer Working Group members. The Bladder Cancer Working Group members will agree on rules to run the Bladder Cancer Working Group (Terms of Reference).

  • The Bladder Cancer Working Group will meet in person once a year in a dedicated meeting preceding the ECPC Annual Meeting. The Bladder Cancer Working Group will also meet at least twice a year via teleconference.
  • The Bladder Cancer Working Group members, or appointed representatives, can be involved by ECPC in other ad-hoc initiatives, when necessary.
  • ECPC will ensure the dissemination of the activities of the Bladder Cancer Working Group, including all the documents approved by the Bladder Cancer Working Group.
  • ECPC will offer administrative and policy formulation support to the Bladder Cancer Working Group.
  • ECPC will provide a private online interaction platform for working group discussions.
  • ECPC will display the Bladder Cancer Working Group members on a dedicated website page.
  • The first meeting will be on Friday 16 June 2016, marking the beginning of the ECPC Annual Meeting.
  • ECPC will offer reasonable financial assistance for travel and accommodation to attend this meeting.