Lydia Makaroff

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Lydia Makaroff is the Director of the European Cancer Patient Coalition. She has over ten years' international experience in non-communicable disease research and policy development in academia, the pharmaceutical industry, and the non-profit sector. She conducted medical research during her PhD at the Australian National University and as a senior post-doctoral fellow at the University of Washington. After working in Global Market Access at a pharmaceutical company, she joined the International Diabetes Federation as their Epidemiology and Public Health Manager. She has experience quantifying the impact of non-communicable diseases, monitoring national governments' commitments to health, providing tools to Member Organisations, writing policy papers, and working with the European Institutions to advocate for change. Lydia holds a PhD in immunology and a Masters' degree in Public Health, and is also a Board member of Pancreatic Cancer Europe and an Associate Researcher at the Translational Immunology laboratory at the University of Leuven. She is an Australian-Belgian dual national who speaks English and has a good knowledge of French.


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Isabelle Manneh-Vangramberen
Project Coordinator

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Isabelle is the ECPC Project Coordinator / Manager and is currently the executive body for all EU funded projects. She holds a double Bachelor of Science in Pharmacy and Pharmaceutical Sciences, a Master degree in Public Health, in addition to a post-master in European Studies specialising in EU Policy & Project Management. Isabelle is a USAID Training Future Leaders Scholarship recipient, a Golden Key International Honour Society member, and a EUPATI Scholar who has dedicated the past 10 years to improving patients' quality of life. Her professional experience ranges from community based participatory research aiming at prevention in the area of Public Health to the provision of Humanitarian Aid in conflict and post-conflict settings under the United Nations among others around the globe. She is a member of the European Health Parliament, elected European Patient Advocacy Group member and TTF Co-lead in the ERN for adult rare solid cancers (EURACAN), active member of the Worldwide Innovative Networking (WIN) Consortium and the European Society of Medical Oncology (ESMO), in addition to being the primary lead of the Patient Advisory Group's input on the IMI-PREFER. Isabelle is Romanian and identifies as a citizen of the world. She speaks fluent English, Romanian, Arabic, a good knowledge of French and has  basic understanding of Spanish and Italian.


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Anna Rek
Community & Communications Manager

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Anna is the ECPC Community & Communications Manager. She holds one Bachelor's degree in European Studies, another Bachelor's degree in Political Science, and a Masters' degree in Contemporary European Studies and European Politics from the University of Sussex in Great Britain. She gained her professional experience and obtained a deep understanding of a healthcare sector while she worked for two worldwide pharmaceutical companies followed by a practice in a Public Relations agency, where she was responsible for developing and implementing health and disease awareness campaigns accompanied by proactive and reactive media relations. Anna has a substantial experience in supporting patient organisations, such as the Polish Cancer Patient Coalition, Melanoma Academy, Amazons, The Star of Hope Foundation and the Foundation for Social Education. As part of her work in managing the ECPC community of patient organisations, Anna is an active member of the World Pancreatic Cancer Coalition, Pancreatic Cancer Europe, and the Make Sense of Head and Neck Cancer campaign. She is an important contact person who connects the European Society for Medical Oncology and the European Medicines Agency to cancer patient organisations throughout Europe. She co-ordinates the ECPC Working Group on Bladder Cancer, the ECPC Annual Congress, the ECPC newsletter, and the ECPC social media channels. Anna is a positive and committed Polish national, who speaks fluent Polish, English and has a good knowledge of French.



Jiska Bolhuis
Financial Officer

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With more than nine years of experience in the field of communication and project management (especially in the field of public policy contracts), Jiska has a large amount of experience in managing and coordinating budgets, contracts, people and events. As a Dutch national, she speaks Dutch and English fluently and has a good knowledge of German, French as well as some basic knowledge of Spanish.



Rafal Swierzewski
Associate Consultant

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Rafal Swierzewski has been involved in patient advocacy for ten years as both a scientist and cancer survivor. He earned his PhD in 2006 by examining the physical and chemical properties of new chemotherapy compounds. He served on ECPC's Board from 2013 to 2016. He currently represents the European Cancer Patient Coalition in the European Medicines Agency together with the Vice-President of the European Cancer Patient Coalition. Through the European Medicines Agency, he has been involved in various projects, such as Adaptive Pathways, ADVANCE and WEBRADR. Rafal also represents patients' interests in the European Union’s clinical trial portal and database of stakeholder groups created within the European Medicines Agency to construct new systems for implementing European regulations on clinical trials and clinical data. Rafal speaks Polish and English.