From 2003 to date
Discover how ECPC started and milestones
Beginning of ECPC …
A meeting between Kathy Redmond from the European School of Oncology and Lynn Faulds Wood, a UK TV presenter who had survived advanced colon cancer in 2002 set the seeds for what later was to become ECPC.
Kathy Redmond and Lynn Faulds Wood both considered important that European cancer patients speak with one voice and joined forces to set up the European Cancer Patient Coalition.
They admired what the Dutch had achieved with their national patient umbrella organisation – NFK – with funding from a forward-thinking Health Minister Els Borst-Eilers. NFK’s Director Patricia Huijbregts agreed to set up the administrative heart of the new Coalition. A Steering Group was formed with Lynn as Chairman and three-year funding for Masterclasses & Educational activities from the European School of Oncology.
ECPC was officially launched at ECCO 2003 in Copenhagen at a press conference with Kathy and Lynn.
The aim of ECPC, under the motto “Nothing About Us, Without Us!”, was to represent the views of cancer patients in the European healthcare debate and to provide a forum for European cancer patient organisations to exchange information and share best practices.
Kathy organised the first Masterclass in Cancer Patient Advocacy at the prestigious European Institute of Oncology in Milan, with an impressive list of speakers including Mrs Borst-Eilers; Umberto Veronesi, Europe’s leading breast surgeon and director of the Institute; and a Brussels-based political lobbyist, cancer survivor Hildrun Sundseth. One hundred people from organisations in 30 countries attended the first Masterclass.
Members of the Steering Group included Jan Geissler, a young, energetic CML survivor with a keen interest in creating a pan-European clinical trials registry; oncologist Dr. Jesme Fox who specialised in lung cancer and gave up being a doctor to campaign for patients, for better research and treatment; Tom Hudson, CEO of the Irish Cancer Society.
Following the first Masterclass, Hildrun Sundseth joined ECPC in 2004 as Head of EU Policy.
Hildrun Sundseth gave a new impetus to ECPC and cancer patient advocacy by introducing new strategic alliances and building the organization’s outreach. It was her idea to set up MEPs Against Cancer, with Alojz Peterle, as group leader, and it was her strategic skills, which ensured that cancer was on the official European Parliament agenda. Hildrun ran the Secretariat for MEPs Against Cancer until 2010.
ECPC played a key role in the preparation and launch of the Cancer Plan by the Commission in September 2009 and Hildrun helped in promoting the role of patients.
Milestones in the history of ECPC
about us>history gallery
First ECPC Steering GroupBack row: Jesme Baird, Claudia di Loreto, Jan Geissler, Ekke BuchlerFront row: Tom Hudson, Lynn Faulds Wood, Kathy Redmond, Heide Preuss, Patricia Huijbreghts
First ECPC Masterclass - 2004
The first ECPC Masterclass for cancer patients organised by Kathy Redmond (front), funded by the European School of Oncology and held at the European Institute of Oncology in Milan in June 2004.
Launch of MAC - 2006
The launch of MAC in Brussels in March 2006 – Chairman Alojz Peterle (MEP Slovenia), Lynn Faulds Wood (Chairman ECPC), Adamos Adamou (MEP Cyprus, co-chair), Liz Lynne (MEP UK, co-chair) and Markos Kyrianou (Commissioner for Health & Consumer Protection)
ECPC and Paediatric cancer - May 2009
May 2009 – Jolanta Kwasniewska, former first lady of Poland, currently running a children’s cancer charity in Poland asked ECPC to help develop standards for the treatment of childhood cancers across Europe with SIOPE – the European Society for Paediatric Oncology. In the photo, from left to right Lynn Faulds Wood, Hildrun Sundseth, Jolanta Kwasniewska, Prof Ruth Landenstein (then President SIOPE) and Ela Pomaska, campaigner from Poland.
ECPC within EPAAC - 2009
Slovenians were the first Presidency to choose reducing the burden of cancer as the aim of their health strategy and they asked ECPC to contribute with a chapter: Patients – Partners for change. In 2009, based on the work of the Slovenian Presidency, the European Commission launched the first Action against Cancer: European Partnership (2009-2013)
ECPC’s first Steering Group
Chairman: Lynn Faulds Wood (UK, cancer survivor)
Steering Committee members
Heide Preuss (Germany), Mamazone
Ekke Büchler (Austria), Selbsthilfe Prostatakrebs
Jan Geissler (Germany), Leukaemia Online
Tom Hudson (Ireland), Europa Uomo – European Prostate Cancer Coalition
Claudia di Loreto (Italy), Italia Malati di Cancro (AIMaC)
Patricia Huijbreghts (the Netherlands), Dutch Federation of Cancer Patients’ Organisation (NFK)
Jesme Baird (UK), Roy Castle Lung Cancer Foundation
Kathy Redmond (Italy), EuropeanSchool of Oncology